Wheelchair accessible and autism friendly home for a child with cerebral palsy.

by: Being Dusty-Mae     Published on: 22 January 2019

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Our home is hardly perfect and not ideally equipped as yet. But we are making progress with time. Dusty is almost 6 years old now. She has a lot of what she needs. Follow as with time we will make more improvements.Dusty has a rare disease, chromosomal microdeletion and microduplication syndrome, cerebral palsy, severe autism, ehlers danlos syndrome, gastroparesis, dysautonomia, mast cell activation syndrome, global developmental delay and intellectual disabilities, her brain does not communicate to her bladder or lungs causing central apnoea and incontinence, please look at our other videos that cover everything.Yes, she's almost 6 years old and yes she uses a dummy, she has weak swallow and eats no food so it helps her mouth, she has breathing problems and it helps her breathe and lastly she's autistic with severe developmental delay and daily pain, the dummy soothes her and she does not need to comply with your perception of age appropriateness, please watch the video linked above about the dummy before you comment.Dustys diagnosis's- https://youtu.be/5xAAHyrPiSMDustys pacifier dummy- https://youtu.be/Fay1Rn0w-wAThe long diagnosis story- https://youtu.be/OpNPd-tbmR0Dusty and I love your support postal address-Being Dusty-MaePO BOX 24 AspleyQueensland, Australia 4034